It Takes Hope

This has been the book of choice for me and my friend, Mary Jo who read it at my visit last week to USF. Jo hates has her picture taken ...

photo credit goes to my friend, Josh. Saturday, May 18 was Friedreich Ataxia Awareness Day. I am totally bummed that this is even a day....

"I’ll be with you as you do this, day after day after day, right up to the end of the age.” This has been ringing in my ear since Tuesd...

I'm stuck inside my head today. I'm sure it's because I literally feel stuck inside the house. This Michigan Spring is for the b...

This therapist needs some therapy. The lack of sun and the continual rain and cold temperatures is certainly taking a toll on my attitude. I...

I think I channeled a bear and went into hibernation this past week. I opted not to spend Spring Break with my family this year as every sec...

 The last visit was the 3 day base line at clinic. I started the time with a questionnaire that was very confusing- it seemed like it was ...