Tuesday, June 29, 2010

inspiring...

Yesterday a good friend and I were chatting. About me getting a trike.

And then I began dreaming. And haven't stopped.

www.rideataxia.blogspot.com

I am sure that is what Kyle did.

Thanks, Kyle for fighting for a cure for FA.

And riding a cool trike, too.

Maybe someday we can meet halfway...

Thursday, June 24, 2010

the wait and see game.

As each day passes, I am so keenly aware of how my life seems to be all about the wait. And then I'll see.

The wait and see.

You think I'd be a pro at this game. But a game is usually fun. Unless you're like my dad and despise board games. At times, FA can be fun. Almost feels like a game. And although I don't consider myself a competitive person, I want to win this game.

You're going down FA!

I want to play this card. The symposium of FA.
http://www.curefa.org/EnergyBall/
Thursday, August 26
USF
Tampa, FL.

I desire to sit amongst the smart people who are "rolling the dice" as they find a cure for FA. I hope to thank the people who own Park Place and Boardwalk as they sacrifice fiscally for the advancement in research of FA. I am willing to risk the humidity and travel for the sake of getting the "out of jail" card.

Because at times, FA makes me feel like a prisoner in my own body.

So I wait and see...

and pray and HOPE.