For whatever reason, I have been intimated to write in this blog. It is so easy to lose sight of the big picture. I tend to get discouraged in the present. I quickly forget the prayers and encouragement in my life. And then there is this winter. I won't go there. I am doing well enough tapping into the downers in my life without dwelling on this HORRIFIC weather. Yes, it's worthy of caps lock.
So, it's time to celebrate the good. Focus on the happy. Fill my soul with HOPE. Now, that deserves to be in all capital letters. It needs to outweigh everything. HOPE.
The end of February marked the completion of the 12 month clinical study on the drug. Two of my friends accompanied me as Wings Of Mercy flew me down in a jet. So fun! The trip is always a whirlwind and would definitely be quite sober if it were my last appointment. However, I have been offered an extension of this study. Wahoooo! My visits will be every three months for the next year. I am beyond thrilled. Not only because of the potential of this drug for the treatment of FA but the relationships I have developed at USF won't be lost. HOPE.
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| Susan and Marcia=my angels |
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| me, Kelly and Patti |
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| on our way home on the WOM jet |
It's about this time that I have a hankering to be down there. I can't explain it. It just keeps me grounded. It enables me to be a part of something bigger than myself. HOPE is in that room at USF. Dr. Z, Kelly, Patti and the countless others remind me to hold on. I keep pressing on and then I read press releases
like this one. There is always HOPE.
