Sunday, February 13, 2011

not long now...


I think we made it. The worst part of winter hopefully is over. My friends facebook status' are filled with comments about the snow melting and photos of the sun that was missing the past couple of months. The last few days I ventured out without a coat and just the six layers of clothing. I have even gone without my gloves and my hands did not suffer from hypothermia. I can not wait for the sound of the birds chirping outside my bedroom window. Soon, this dreadful winter will be a thing of the past.
And someday that will be said of this dreaded disease. FA will be a thing of the past. I have to believe it. I can feel it in my bones. Just like the promises of Spring.
Winter is hard. A challenge for the able-body. But for someone like me with FA, it's next to impossible. Parking in snow covered parking lots are a nightmare if you depend on that open space to lower a ramp for a wheelchair. If parking is possible the prayer is that the sidewalk to the door is shoveled. Once you enter the destination, the fear of the door to the van doesn't freeze shut while you're inside. If all of this is accomplished, it is guaranteed that your limbs have froze due to the lack of circulation in a wheelchair. The joys of winter.
I looked forward to a new wheelchair. Once again, winter has won that battle. After getting stuck twice in my new duds, I gave up and plopped in my old chair... until the birds begin to sing.
So, I will wait. Again. Always. I will wait...
This photo was shot before the major snow fell. Me and my chair. And a co-worker attempting to be funny. And Delsie? Just waiting patiently, as always.
I should take lessons from her on waiting. You think I would have this whole waiting thing down pat. I don't. I'm not very good at it.
These long winter months are proof of that...not long now...
Spring and a cure- how cool would that be?!

3 comments:

  1. Hello Holly and Delsie, I also have a terminal illness and try to keep as jolly as you. I also have a dog ,my dearest and loyal friend forever by my side.

    I shall be a regular here now Holly just to pop in and say hi . I echo your words Spring and a cure that would be so so cool.

    Take care xx

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  2. Holly:
    My 18 year old son Nate was diagnosed with SCA- 7 two years ago. He is still walking but is struggling more and more. Nate can't drive because of vision and is attending college part time. I read your story a year ago and decided to look into a support dog. We will be leaving for St Louis this Saturday Feb 27th for 2 weeks of training and get a dog! We would appreciate any guidance, recommedations, comments on what to expect with our new family member. Feel free to email me at Dredman@equitableonlin.com.
    FYI this is the 2nd comment I made, it doesn't appear the first went through.
    Thanks
    Doug Redman
    Grand Island Nebraska

    ReplyDelete
  3. Thats dredman@equitableonline.com
    Thanks for your help

    ReplyDelete