He makes me wanna be...

I went into full gear for a solid month. Endless phone calls, emails and doctor visits. In the phoning process I discovered the clinical study in PA was full. My curiosity got the best of me and I called down to FL. The study allows 16 FA patients. 8 ambulatory (can walk without assistance 25 feet) and 8 non-ambulatory (which obviously was me). Before I knew it I was "pre-screening" over the phone with the administrator at University of Florida. Answering the easy questions, do I smoke? have a history of clinical depression? am I taking any medication? Not known for being a good test taker, I was pleased to hear that I passed.
Wait! Passed what? What did this mean? I soon discovered that it meant I had to pass the formal screening. Blood work (TONS of it) EKG, echo cardiogram and a visit to my primary physician. The game was on and I was in "do mode" to pass this screening. Not really sure why but it was a challenge to try figure out all the insurance stuff and make all the doctor appointments. But I did it. And then I had to wait for the researchers to say I passed. And I did.
Wait! Now what? This meant I was accepted into the clinical study for FA at the University of Florida.
I felt a little dose of hope. There may be treatment or even a cure for those diagnosed with FA. A little dab would do me. A dollop of hope.
I didn't stop to breath and think of the ramifications of it all until one of my best friend wrote this in her email when I told her I had no clue what I was doing but I got accepted in a clinical study for FA:
"I am so proud of you, Holly. You are brave to do this..."
It was at that moment the tears began to flow. Not because I felt courageous but that God answered my plea in my boredom. My life, lil' 'ole me, may help find a cure for this awful disease that has robbed me of so much. But one thing I know and am confident of, FA is not going to steal my joy. Just like the song, BRAVE by Nicole Nordemon, "I think I just let go".