news clip

Even though this disorder as progressed over the past 17 years and I have lost the ability to walk, in my mind I see myself as a completely "normal", physically fit person.

Last summer I cheered my sister on in her fist marathon in Indiana. I was perplexed after the 5th runner smiled at me and said "Hi" and thanked me for coming. Seriously, did I have a booger hanging out of my nose?! Was my fly down?! Why do these runners keep singling me out?!! By the time the 20th sweaty, panting runner acknowledged me, I had one of those OPRAH "ah-ha" moments. These marathon runners saw me different- I quickly became a girl in a wheelchair with a service dog. It was, and is, a fact that I wouldn't run in a marathon with them and maybe for that moment, they gained a perspective and got the 2nd wind that they needed to get through the race.

I forget that I am in this dumb chair and have a beautiful black lab to help me "do" life. So, when News 3 called yesterday to do this story, I fought back my pride and did it. As I watched this clip last night, I battled the tears as I was able to see so clearly what FA has taken from me.

Well, sorry FA, I want it back. You can't have it. You are not going to win. I hate what you have done and are doing.

So, the game is on...

Day #5 on Chantix. I will slowly be increasing to a double dose next week. The investigators called yesterday and asked me a battery of questions:
Sleeping? yep.
nausea? nope.
suicidal thoughts? nope.
depressed? nope.
but I will say I have had some BIZARRE dreams.